Positive test results

If genetic testing reveals that you carry a gene with changes that increase your risk of breast cancer, you might experience a range of responses to learning your test results, including:

• Anxiety about developing cancer. Carrying an altered gene doesn't mean you'll definitely get cancer. Test results can't determine your exact level of risk, at what age you may develop cancer or how aggressively the disease might progress.
• Relief of knowing your risk status. You may view your test results in a positive light: Now you know what you're up against. You can step up cancer surveillance efforts or take risk-reducing steps, such as preventive surgery or medications. You also have the potential to inform and educate family members who may be affected.
• Strained family relationships. Some of your relatives may not want to know there's been a worrisome gene detected within the family. But it may be hard to keep the truth from close family members if you're planning proactive measures, such as preventive surgery. Give thought beforehand to how — or even if — you'll share your test results with family members.
• Worry about passing a gene to your child. Learning your genetic status could prompt fears that your children may have inherited the gene. If you learn that you are a carrier of a gene linked to breast cancer, this can lead to more questions and anxiety about when is the best time to discuss the results with your children.
• Stress over major medical decisions. Receiving a positive test result means you'll want to consider cancer prevention and early detection strategies that are best for you. Discussing options with a genetic counselor, breast specialist or oncologist can help guide you.

Talk about these — or any other — concerns with your genetic counselor or other health care provider.