Diseases and Conditions

Amyotrophic lateral sclerosis (ALS)

Preparing for an appointment

You might first consult your family doctor about signs and symptoms of ALS. Then your doctor will probably refer you to a doctor trained in nervous system conditions (neurologist) for further evaluation.

What you can do

You might need many tests to diagnose your condition, which can be stressful and frustrating. These strategies might give you a greater sense of control.

  • Keep a symptom diary. Before you see a neurologist, start using a calendar or notebook to jot down when and how you notice problems with walking, hand coordination, speech, swallowing or involuntary muscle movements. Your notes might show a pattern that's helpful for your diagnosis.
  • Find a neurologist and care team. An integrated care team led by your neurologist usually is most appropriate for your ALS care. Your team should communicate with each other and be familiar with your needs.

What to expect from your doctor

Your family doctor will review your family's medical history and your signs and symptoms. Your neurologist and your family doctor might conduct a physical and neurological examination, which might include testing the following:

  • Reflexes
  • Muscle strength
  • Muscle tone
  • Senses of touch and sight
  • Coordination
  • Balance