Coping and support

When a child is diagnosed with a disabling condition, the whole family faces new challenges. Here are a few tips for caring for your child and yourself:

• Foster your child's independence. Encourage any effort at independence, no matter how small. At any age, your child's participation in social, educational, employment, recreational and other community activities can help them participate in society and have a positive effect on quality of life.
• Be an advocate for your child. You're an important part of your child's health care team. Don't be afraid to speak out on your child's behalf or to ask tough questions of your physicians, therapists and teachers.
• Find support. A circle of support can make a big difference in helping you and your family cope with cerebral palsy and its effects. As a parent, you might feel grief and guilt over your child's disability. Your doctor can help you locate support groups, organizations and counseling services in your community. Your child might also benefit from family support programs, school programs and counseling.
• Access services. Early intervention and special education services are available for children under 21 years of age through the Individuals with Disabilities Education Act. Services for adults with disabilities are also available. Talk with your health care team about how to access programs and services in your area.

Community resources and support for adults

In addition to addressing health needs, caring for your adult loved one with cerebral palsy may include planning for current and future lifestyle needs, such as:

• Guardianship
• Living arrangements
• Social and recreational participation
• Employment
• Financial support