Churg-Strauss syndrome
Preparing for an appointment
If you have signs and symptoms common to Churg-Strauss syndrome, make an appointment with your doctor. Early diagnosis and treatment significantly improve the outlook of this condition.
You may be referred to a doctor who specializes in disorders that cause blood vessel inflammation (vasculitis), such as a rheumatologist or immunologist. You might also see a pulmonologist since Churg-Strauss affects your respiratory tract.
Here's some information to help you get ready for your appointment.
What you can do
When you make an appointment, ask if you need to do anything in advance, such as restrict your diet. Also ask if you need to stay at your doctor's office for observation following your tests.
Make a list of:
- Your symptoms and when they began, even those that seem unrelated to Churg-Strauss syndrome
- Key medical information, including other conditions with which you've been diagnosed
- All medications, vitamins and other supplements you take, including doses
- Questions to ask your doctor
If you've seen other doctors for your condition, bring a letter summarizing their findings and copies of recent chest X-rays or sinus X-rays. Take a family member or friend along to help you remember the information you receive.
Basic questions to ask your doctor might include:
- What's the most likely cause of my condition?
- What are other possible causes?
- What diagnostic tests do I need?
- What treatment do you recommend?
- What life changes can I make to help reduce or manage my symptoms?
- How often will you see me for follow-up tests?
What to expect from your doctor
A doctor who sees you for possible Churg-Strauss syndrome is likely to ask you questions, such as:
- Have your symptoms, especially asthma-related, worsened over time?
- Do your symptoms include shortness of breath or wheezing?
- Do your symptoms include sinus problems?
- Do your symptoms include gastrointestinal problems, such as nausea, vomiting or diarrhea?
- Have you been having numbness, pain, or weakness in an arm or leg?
- Have you lost weight without trying?
- Have you been diagnosed with any other medical conditions, including allergies or asthma? If so, how long have you had them?