Coping and support

Receiving a diagnosis of dementia can be devastating. You'll need to consider many details to ensure that you and others are as prepared as possible for dealing with a condition that's unpredictable and progressive.

Care and support for the person with the disease

Here are some suggestions you can try to help yourself cope with the disease:

• Learn about memory loss, dementia and Alzheimer's disease.
• Write about your feelings in a journal.
• Join a local support group.
• Get individual or family counseling.
• Talk to a member of your spiritual community or another person who can help you with your spiritual needs.
• Stay active and involved, volunteer, exercise, and participate in activities for people with memory loss.
• Spend time with friends and family.
• Participate in an online community of people who are having similar experiences.
• Find new ways to express yourself, such as through painting, singing or writing.
• Delegate help with decision-making to someone you trust.

Helping someone with dementia

You can help a person cope with the disease by listening, reassuring the person that he or she still can enjoy life, being supportive and positive, and doing your best to help the person retain dignity and self-respect.

Support for caregivers and care partners

Providing care for someone with dementia is physically and emotionally demanding. Feelings of anger and guilt, frustration and discouragement, worry, grief, and social isolation are common. If you're a caregiver or care partner for someone with dementia:

• Learn about the disease and participate in caregiver education programs
• Find out about supportive services in your community, such as respite care or adult care, which can give you a break from caregiving at scheduled times during the week
• Ask friends or other family members for help
• Take care of your physical, emotional and spiritual health
• Ask questions of doctors, social workers and others involved in the care of your loved one
• Join a support group