Coping and support

With time, you'll find what helps you cope with the uncertainty and distress of being diagnosed with a rare tumor. Until then, you may find that it helps to:

• Learn enough about desmoid tumors to make decisions about your care. Ask your doctor about your condition, including your test results, treatment options and, if you like, your prognosis. As you learn more about desmoid tumors, you may become more confident in making treatment decisions.
• Keep friends and family close. Keeping your close relationships strong will help you deal with your diagnosis. Friends and family can provide the practical support you'll need, such as helping take care of your home if you're in the hospital. And they can serve as emotional support when you feel overwhelmed.
• Find someone to talk with. Find a good listener who is willing to hear you talk about your hopes and fears. This may be a friend or family member. The concern and understanding of a counselor, medical social worker, clergy member or support group also may be helpful.