Desmoid tumors
Preparing for an appointment
Make an appointment with your doctor if you have any signs or symptoms that worry you. If your doctor suspects that you might have desmoid tumor, he or she may refer you to a doctor who specializes in treating cancer (oncologist).
Here's some information to help you get ready for your appointment.
What you can do
When you make the appointment, ask if there's anything you need to do in advance, such as fasting before having a specific test.
Gather the medical records that pertain to your condition and bring them to your appointment. If you're seeing a new doctor, ask your previous doctor to forward files and other information, such as glass slides that contain tissue samples, to your new doctor.
Make a list of:
- Your symptoms, including any that seem unrelated to the reason for your appointment
- Key personal information, including major stresses, recent life changes and family medical history
- All medications, vitamins or other supplements you take, including the doses
- Questions to ask your doctor
Consider bringing a family member or friend to help you remember the information you're given.
For desmoid tumors, some basic questions to ask your doctor include:
- What's likely causing my symptoms?
- Other than the most likely cause, what are other possible causes for my symptoms?
- What tests do I need?
- What's the best course of action?
- What are the alternatives to the primary approach you're suggesting?
- What will happen if I don't have surgery or other medical treatments for my condition?
- I have other health conditions. How can I best manage them together?
- Are there restrictions I need to follow?
- Should I see a specialist?
- Are there brochures or other printed material I can have? What websites do you recommend?
Don't hesitate to ask other questions.
What to expect from your doctor
Your doctor is likely to ask you several questions, such as:
- When did your symptoms begin?
- Have your symptoms been continuous or occasional?
- How severe are your symptoms?
- What, if anything, seems to improve your symptoms?
- What, if anything, appears to worsen your symptoms?
- What else should I know about you that will help me make the right recommendations about your care?