Diseases and Conditions

Huntington's disease

Preparing for an appointment

If you have any signs or symptoms associated with Huntington's disease, you'll likely be referred to a neurologist after an initial visit to your family doctor.

A review of your symptoms, mental state, medical history and family medical history can all be important in the clinical assessment of a potential neurological disorder.

What you can do

Before your appointment, make a list that includes the following:

  • Signs or symptoms — or any changes from what is normal for you — that may be causing concern
  • Recent changes or stresses in your life
  • All medications — including over-the-counter drugs and dietary supplements — and doses you take
  • Family history of Huntington's disease or other disorders that may cause movement disorders or psychiatric conditions

You may want a family member or friend to accompany you to your appointment. This person can provide support and offer a different perspective on the effect of symptoms on your functional abilities.

What to expect from your doctor

Your doctor is likely to ask you a number of questions, including the following:

  • When did you begin experiencing symptoms?
  • Have your symptoms been continuous or intermittent?
  • Has anyone in your family ever been diagnosed with Huntington's disease?
  • Has anyone in your family been diagnosed with another movement disorder or psychiatric disorder?
  • Are you having trouble performing work, schoolwork or daily tasks?
  • Has anyone in your family died young?
  • Is anyone in your family in a nursing home?
  • Is anyone in your family fidgety or moving all the time?
  • Have you noticed a change in your general mood?
  • Do you feel sad all of the time?
  • Have you ever thought about suicide?