Coping and support

With the help of rehabilitative therapies and educational interventions, many people with hydrocephalus live with few limitations.

There are many resources available to provide emotional and medical support as you parent a child with hydrocephalus. Children with developmental problems due to hydrocephalus might be eligible for government-sponsored health care and other support services. Check with your state or county social services agency.

Hospitals and organizations serving people with disabilities are good resources for emotional and practical support, as are doctors and nurses. Ask for help connecting with other families who are coping with hydrocephalus.

Adults living with hydrocephalus might find valuable information and support from organizations dedicated to hydrocephalus education and support, such as the Hydrocephalus Association.

Should you be vaccinated against meningitis?

Ask your doctor if you or your child should receive a vaccine against meningitis, once a common cause of hydrocephalus. The Centers for Disease Control and Prevention recommends meningitis vaccination for preteen children and boosters for teenagers. Vaccination is also recommended for younger children and adults who might be at increased risk of meningitis for any of the following reasons:

• Traveling to countries where meningitis is common
• Having an immune system disorder called terminal complement deficiency
• Having a damaged spleen or having had the spleen removed
• Living in a college dormitory
• Joining the military