Diseases and Conditions

Muscular dystrophy

Preparing for an appointment

You might be referred to a doctor who specializes in the diagnosis and treatment of muscular dystrophy.

What you can do

  • Write down your or your child's signs and symptoms and when they began.
  • Bring photos or video recordings to show the doctor the symptoms that concern you.
  • Write down key medical information, including other conditions.
  • Make a list of all medications, vitamins and supplements you or your child takes, including doses.
  • Tell your doctor whether anyone in your family has been diagnosed with muscular dystrophy.

Questions to ask your or your child's doctor

  • What's the most likely cause of these signs and symptoms?
  • What tests are needed?
  • What are the possible complications of this condition?
  • What treatments do you recommend?
  • What is the long-term outlook?
  • Do you recommend that our family meet with a genetic counselor?

Don't hesitate to ask other questions during your appointment.

What to expect from your doctor

Your doctor is likely to ask you questions, such as:

  • Are the symptoms getting worse?
  • What, if anything, relieves them?
  • What, if anything, makes them worse?
  • Do you plan on having more children?

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