Preparing for an appointment

You'll likely start by seeing your family doctor or primary care doctor. If your doctor suspects that you have a myelodysplastic syndrome, you might be referred to a doctor who specializes in blood disorders (hematologist).

Here's some information to help you get ready for your appointment.

What you can do

When you make the appointment, ask if there's anything you need to do in advance, such as restrict your diet.

Make a list of:

• Your symptoms, including those that seem unrelated to the reason for the appointment, and when they began
• Key personal information, including previous treatment for cancer or exposure to toxic chemicals
• All medications, vitamins and supplements you take, including doses
• Questions to ask your doctor

Consider taking a family member or friend along to help you remember the information you're given.

For myelodysplastic syndromes, questions to ask your doctor might include:

• What type of myelodysplastic syndrome do I have?
• Will I need more tests?
• What is my prognosis?
• What is my risk of leukemia?
• If I need treatment, what are my options and what do you recommend?
• I have other health conditions. How can I best manage them together?
• Are there restrictions I need to follow?
• Are there brochures or other printed material that I can have? What websites do you recommend?

Don't hesitate to ask other questions.

What to expect from your doctor

Your doctor is likely to ask questions, such as:

• Have your symptoms been continuous or occasional?
• How severe are your symptoms?
• What, if anything, seems to improve your symptoms?
• What, if anything, appears to worsen your symptoms?