Preparing for an appointment

Although your symptoms may prompt you to visit your primary care doctor, you'll likely be referred to a doctor who specializes in diseases of the digestive system (gastroenterologist) to diagnose and treat Zollinger-Ellison syndrome. You may also be referred to an oncologist, a doctor who specializes in treating cancer.

Here's some information to help you get ready for your appointment and know what to expect from your doctor.

What you can do

• Be aware of any pre-appointment restrictions. When you make the appointment, let your doctor's staff know if you take any medications. Certain acid-reducing drugs, such as proton pump inhibitors or H-2 antagonists, can alter the results of some tests used to diagnose Zollinger-Ellison syndrome. However, don't stop taking these medications without consulting your doctor.
• Write down any symptoms you're experiencing, including any that may seem unrelated.
• Write down key personal information, including any major stresses or recent life changes. Also write down what you know of your family's medical history.
• Make a list of all medications, vitamins or supplements you're taking.
• Write down questions to ask your doctor.

Questions to ask your doctor

For Zollinger-Ellison syndrome, some basic questions to ask include:

• What's the most likely cause of my symptoms?
• Is there any other explanation for my symptoms?
• What tests do I need to confirm the diagnosis? How should I prepare for those tests?
• What treatments are available for Zollinger-Ellison syndrome, and which do you recommend for me?
• Are there dietary restrictions I need to follow?
• How often do I need to come back for follow-up appointments?
• What's my prognosis?
• Do I need to see a specialist?
• Is there a generic alternative for the medication you're prescribing for me?
• Are there websites you recommend to learn more about Zollinger-Ellison syndrome?
• Are any other medical problems more likely to occur because I have Zollinger-Ellison syndrome?

What to expect from your doctor

Your doctor is likely to ask you a number of questions, including:

• When did you begin experiencing symptoms?
• Do you have symptoms all the time, or do they come and go?
• How severe are your symptoms?
• Does anything make your symptoms better?
• Have you noticed anything that makes your symptoms worse?
• Have you ever been told you have a stomach ulcer? How was it diagnosed?
• Have you or has anyone in your family ever been diagnosed with multiple endocrine neoplasia, type 1?
• Have you or has anyone in your family been diagnosed with parathyroid, thyroid or pituitary problems?
• Have you ever been told you have high blood calcium?